Identifying and caring for rare disease patients at risk of COVID-19 complications
Patients and the healthcare system have faced immense challenges as the COVID-19 pandemic has evolved. Rare and complex disease patients — whose underlying conditions compromise their immune, respiratory and cardiac systems — have been hit especially hard. In a recent survey by CORD, more than two-thirds of rare disease patients expressed concern about seeking healthcare […]
Improving the Diagnosis of Rare Diseases: An Economic Imperative
The cost of treating rare disease patients, specifically around orphan drugs, has been widely studied. According to a report by the Canadian Government’s Standing Committee on Health, drugs for rare diseases can cost between $500,000 to $4.9 million per person per year. But what about the cost of diagnosis? Patients with rare diseases face unique […]
The Power of AI in Diagnosing Rare Disease
The debate of risk vs. reward of AI and ML has been raging for years. For the most part, though, business leaders are embracing the potential of AI to drive innovation and efficiencies in many industries. One of the most exciting areas for AI and ML innovation is in healthcare, particularly in the diagnosis and […]
Accelerating diagnosis and the right care pathways for rare disease patients
Guest post by Paulo Gomes, Co-founder, Khure Health I have a rare condition which I was diagnosed with in my early 20’s. I would get rare episodes of autoimmune reactions and depending on the intensity, I would pump myself full of steroids and antihistamines to try to deal with it. Sometimes it would help, […]